{"id":1703,"date":"2020-04-08T11:25:20","date_gmt":"2020-04-08T09:25:20","guid":{"rendered":"http:\/\/debra.novatask.biz\/offerte-di-debra\/"},"modified":"2026-02-17T18:16:30","modified_gmt":"2026-02-17T17:16:30","slug":"offerte-di-debra","status":"publish","type":"page","link":"https:\/\/www.schmetterlingskinder.ch\/it\/offerte-di-debra\/","title":{"rendered":"Offerte di DEBRA"},"content":{"rendered":"\t\t<div data-elementor-type=\"wp-page\" data-elementor-id=\"1703\" class=\"elementor elementor-1703 elementor-60\" data-elementor-post-type=\"page\">\n\t\t\t\t\t\t<section data-particle_enable=\"false\" data-particle-mobile-disabled=\"false\" class=\"elementor-section elementor-top-section elementor-element elementor-element-cc4fdd4 elementor-section-full_width elementor-section-content-bottom elementor-section-height-default elementor-section-height-default\" data-id=\"cc4fdd4\" data-element_type=\"section\" data-e-type=\"section\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;,&quot;shape_divider_bottom&quot;:&quot;waves&quot;,&quot;shape_divider_bottom_negative&quot;:&quot;yes&quot;}\">\n\t\t\t\t\t<div class=\"elementor-shape elementor-shape-bottom\" aria-hidden=\"true\" data-negative=\"true\">\n\t\t\t<svg xmlns=\"http:\/\/www.w3.org\/2000\/svg\" viewBox=\"0 0 1000 100\" preserveAspectRatio=\"none\">\n\t<path class=\"elementor-shape-fill\" d=\"M790.5,93.1c-59.3-5.3-116.8-18-192.6-50c-29.6-12.7-76.9-31-100.5-35.9c-23.6-4.9-52.6-7.8-75.5-5.3\n\tc-10.2,1.1-22.6,1.4-50.1,7.4c-27.2,6.3-58.2,16.6-79.4,24.7c-41.3,15.9-94.9,21.9-134,22.6C72,58.2,0,25.8,0,25.8V100h1000V65.3\n\tc0,0-51.5,19.4-106.2,25.7C839.5,97,814.1,95.2,790.5,93.1z\"\/>\n<\/svg>\t\t<\/div>\n\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-c630241\" data-id=\"c630241\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<section data-particle_enable=\"false\" data-particle-mobile-disabled=\"false\" class=\"elementor-section elementor-inner-section elementor-element elementor-element-a99b813 slider-box elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"a99b813\" data-element_type=\"section\" data-e-type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-50 elementor-inner-column elementor-element elementor-element-61d348b animated-fast elementor-hidden-phone elementor-invisible\" data-id=\"61d348b\" data-element_type=\"column\" data-e-type=\"column\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;,&quot;animation&quot;:&quot;slideInUp&quot;}\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-5a019bc elementor-widget elementor-widget-heading\" data-id=\"5a019bc\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h2 class=\"elementor-heading-title elementor-size-default\">Cos\u2019\u00e8 l\u2019EB?<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-58b8246 elementor-widget elementor-widget-text-editor\" data-id=\"58b8246\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p>L&#8217;epidermolisi bollosa (EB) \u00e8 una malattia della pelle congenita, grave e attualmente incurabile. Quelli colpiti sono chiamati colloquialmente&#8221;bambini farfalla&#8221; perch\u00e9 la pelle \u00e8 simbolicamente vulnerabile come le ali di una farfalla. Come organizzazione di pazienti, Debra svizzera sostiene le famiglie e la rete di pazienti colpiti nella gestione dei problemi e delle preoccupazioni quotidiane.<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-05de512 elementor-widget elementor-widget-button\" data-id=\"05de512\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"button.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<div class=\"elementor-button-wrapper\">\n\t\t\t\t\t<a class=\"elementor-button elementor-button-link elementor-size-md\" href=\"https:\/\/www.schmetterlingskinder.ch\/it\/informazioni-sulleb\/\">\n\t\t\t\t\t\t<span class=\"elementor-button-content-wrapper\">\n\t\t\t\t\t\t\t\t\t<span class=\"elementor-button-text\">Per sapere di pi\u00f9 <\/span>\n\t\t\t\t\t<\/span>\n\t\t\t\t\t<\/a>\n\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t<div class=\"elementor-column elementor-col-50 elementor-inner-column elementor-element elementor-element-5999f48\" data-id=\"5999f48\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap\">\n\t\t\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<div class=\"elementor-element elementor-element-60952e8 elementor--h-position-left elementor--v-position-top elementor-arrows-position-inside elementor-widget elementor-widget-slides\" data-id=\"60952e8\" data-element_type=\"widget\" data-e-type=\"widget\" data-settings=\"{&quot;navigation&quot;:&quot;arrows&quot;,&quot;transition&quot;:&quot;fade&quot;,&quot;autoplay&quot;:&quot;yes&quot;,&quot;pause_on_hover&quot;:&quot;yes&quot;,&quot;pause_on_interaction&quot;:&quot;yes&quot;,&quot;autoplay_speed&quot;:5000,&quot;infinite&quot;:&quot;yes&quot;,&quot;transition_speed&quot;:500}\" data-widget_type=\"slides.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<div class=\"elementor-swiper\">\n\t\t\t\t\t<div class=\"elementor-slides-wrapper elementor-main-swiper swiper\" role=\"region\" aria-roledescription=\"carousel\" aria-label=\"Slides\" dir=\"ltr\" data-animation=\"fadeInUp\">\n\t\t\t\t<div class=\"swiper-wrapper elementor-slides\">\n\t\t\t\t\t\t\t\t\t\t<div class=\"elementor-repeater-item-238136a swiper-slide\" role=\"group\" aria-roledescription=\"slide\"><div class=\"swiper-slide-bg\" role=\"img\" aria-label=\"banner3\"><\/div><div class=\"swiper-slide-inner\" ><div class=\"swiper-slide-contents\"><div class=\"elementor-slide-description\"><p>\u00c8 questa la sensazione che prova un bambino farfalla.<\/p>\n<\/div><\/div><\/div><\/div><div class=\"elementor-repeater-item-ea8f5bc swiper-slide\" role=\"group\" aria-roledescription=\"slide\"><div class=\"swiper-slide-bg\" role=\"img\" aria-label=\"banner9\"><\/div><div class=\"swiper-slide-inner\" ><div class=\"swiper-slide-contents\"><div class=\"elementor-slide-description\"><p>\u00c8 questa la sensazione che prova un bambino farfalla.<\/p>\n<\/div><\/div><\/div><\/div><div class=\"elementor-repeater-item-02357dd swiper-slide\" role=\"group\" aria-roledescription=\"slide\"><div class=\"swiper-slide-bg\" role=\"img\" aria-label=\"waterwings\"><\/div><div class=\"swiper-slide-inner\" ><div class=\"swiper-slide-contents\"><div class=\"elementor-slide-description\"><p>\u00c8 questa la sensazione che prova un bambino farfalla.<\/p>\n<\/div><\/div><\/div><\/div><div class=\"elementor-repeater-item-c3fa76f swiper-slide\" role=\"group\" aria-roledescription=\"slide\"><div class=\"swiper-slide-bg\" role=\"img\" aria-label=\"banner2\"><\/div><div class=\"swiper-slide-inner\" ><div class=\"swiper-slide-contents\"><div class=\"elementor-slide-description\"><p>\u00c8 questa la sensazione che prova un bambino farfalla.<\/p>\n<\/div><\/div><\/div><\/div><div class=\"elementor-repeater-item-95956b6 swiper-slide\" role=\"group\" aria-roledescription=\"slide\"><div class=\"swiper-slide-bg\" role=\"img\" aria-label=\"banner8\"><\/div><div class=\"swiper-slide-inner\" ><div class=\"swiper-slide-contents\"><div class=\"elementor-slide-description\"><p>\u00c8 questa la sensazione che prova un bambino farfalla.<\/p>\n<\/div><\/div><\/div><\/div><div class=\"elementor-repeater-item-8047e06 swiper-slide\" role=\"group\" aria-roledescription=\"slide\"><div class=\"swiper-slide-bg\" role=\"img\" aria-label=\"banner6\"><\/div><div class=\"swiper-slide-inner\" ><div class=\"swiper-slide-contents\"><div class=\"elementor-slide-description\"><p>\u00c8 questa la sensazione che prova un bambino farfalla.<\/p>\n<\/div><\/div><\/div><\/div><div class=\"elementor-repeater-item-601c571 swiper-slide\" role=\"group\" aria-roledescription=\"slide\"><div class=\"swiper-slide-bg\" role=\"img\" aria-label=\"banner5\"><\/div><div class=\"swiper-slide-inner\" ><div class=\"swiper-slide-contents\"><div class=\"elementor-slide-description\"><p>\u00c8 questa la sensazione che prova un bambino farfalla.<\/p>\n<\/div><\/div><\/div><\/div><div class=\"elementor-repeater-item-194c920 swiper-slide\" role=\"group\" aria-roledescription=\"slide\"><div class=\"swiper-slide-bg\" role=\"img\" aria-label=\"banner7\"><\/div><div class=\"swiper-slide-inner\" ><div class=\"swiper-slide-contents\"><div class=\"elementor-slide-description\"><p>\u00c8 questa la sensazione che prova un bambino farfalla.<\/p>\n<\/div><\/div><\/div><\/div><div class=\"elementor-repeater-item-0291e75 swiper-slide\" role=\"group\" aria-roledescription=\"slide\"><div class=\"swiper-slide-bg\" role=\"img\" aria-label=\"banner4\"><\/div><div class=\"swiper-slide-inner\" ><div class=\"swiper-slide-contents\"><div class=\"elementor-slide-description\"><p>\u00c8 questa la sensazione che prova un bambino farfalla.<\/p>\n<\/div><\/div><\/div><\/div>\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<div class=\"elementor-swiper-button elementor-swiper-button-prev\" role=\"button\" tabindex=\"0\" aria-label=\"Diapositiva precedente\">\n\t\t\t\t\t\t\t<i aria-hidden=\"true\" class=\"eicon-chevron-left\"><\/i>\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t<div class=\"elementor-swiper-button elementor-swiper-button-next\" role=\"button\" tabindex=\"0\" aria-label=\"Prossima diapositiva\">\n\t\t\t\t\t\t\t<i aria-hidden=\"true\" class=\"eicon-chevron-right\"><\/i>\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-ca7b8ef elementor-absolute elementor-widget elementor-widget-template\" data-id=\"ca7b8ef\" data-element_type=\"widget\" data-e-type=\"widget\" data-settings=\"{&quot;_position&quot;:&quot;absolute&quot;}\" data-widget_type=\"template.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<div class=\"elementor-template\">\n\t\t\t\t\t<div data-elementor-type=\"section\" data-elementor-id=\"1773\" class=\"elementor elementor-1773 elementor-543 elementor-543\" data-elementor-post-type=\"elementor_library\">\n\t\t\t\t\t<section data-particle_enable=\"false\" data-particle-mobile-disabled=\"false\" class=\"elementor-section elementor-top-section elementor-element elementor-element-59a07fc elementor-section-height-min-height elementor-hidden-phone elementor-hidden-tablet elementor-section-boxed elementor-section-height-default elementor-section-items-middle\" data-id=\"59a07fc\" data-element_type=\"section\" data-e-type=\"section\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;,&quot;shape_divider_bottom&quot;:&quot;waves&quot;}\">\n\t\t\t\t\t<div class=\"elementor-shape elementor-shape-bottom\" aria-hidden=\"true\" data-negative=\"false\">\n\t\t\t<svg xmlns=\"http:\/\/www.w3.org\/2000\/svg\" viewBox=\"0 0 1000 100\" preserveAspectRatio=\"none\">\n\t<path class=\"elementor-shape-fill\" 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elementor-element elementor-element-fc93cb8\" data-id=\"fc93cb8\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap\">\n\t\t\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section data-particle_enable=\"false\" data-particle-mobile-disabled=\"false\" class=\"elementor-section elementor-top-section elementor-element elementor-element-f3833db elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"f3833db\" data-element_type=\"section\" data-e-type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-43194e4\" data-id=\"43194e4\" data-element_type=\"column\" 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510.641,139.288C510.197,139.296 504.074,139.428 495.223,141.185C483.939,143.334 473.66,147.056 465.514,151.952C446.211,163.025 427.06,181.507 427.06,201.556C427.06,205.966 427.988,210.454 430.042,214.956C436.872,229.894 449.297,237.649 449.822,237.97C467.977,251.035 489.059,252.781 497.688,241.856C500.082,238.826 501.23,235.145 501.23,231.119C501.23,223.522 496.924,214.749 489.389,206.748C496.496,207.731 503.75,208.405 511.379,207.938C546.957,205.735 574.613,188.979 574.328,169.788C574.242,164.033 571.539,158.521 566.518,153.851ZM476.814,221.456C476.775,224.079 475.963,226.14 474.398,227.587C469.271,232.333 457.434,228.962 448.557,220.22C442.705,214.45 439.127,207.35 439.213,201.7C439.254,199.076 440.064,197.016 441.623,195.567C446.748,190.818 458.582,194.202 467.463,202.954C473.25,208.645 476.814,215.635 476.814,221.255L476.814,221.456ZM533.373,170.394C533.373,180.691 515.994,190.445 495.295,191.73C480.744,192.619 467.553,189.32 460.867,183.128C458.248,180.698 456.895,178.028 456.853,175.193C456.701,164.845 474.139,155.018 494.938,153.736C509.484,152.838 522.672,156.131 529.357,162.329C531.98,164.755 533.33,167.426 533.373,170.26L533.373,170.394Z\" style=\"fill:none;stroke-width:1.38px;stroke:#da2128;\"><\/path>        <\/g>    <\/g><\/svg>\t\t\t\t<\/span>\n\t\t\t<\/div>\n\t\t\t\n\t\t\t\t\t\t<div class=\"elementor-icon-box-content\">\n\n\t\t\t\t\t\t\t\t\t<h1 class=\"elementor-icon-box-title\">\n\t\t\t\t\t\t<span  >\n\t\t\t\t\t\t\tConsulenza e sostegno\t\t\t\t\t\t<\/span>\n\t\t\t\t\t<\/h1>\n\t\t\t\t\n\t\t\t\t\n\t\t\t<\/div>\n\t\t\t\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-56df2c9 elementor-widget elementor-widget-spacer\" data-id=\"56df2c9\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"spacer.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<div class=\"elementor-spacer\">\n\t\t\t<div class=\"elementor-spacer-inner\"><\/div>\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section data-particle_enable=\"false\" data-particle-mobile-disabled=\"false\" class=\"elementor-section elementor-top-section elementor-element elementor-element-1bca0ac elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"1bca0ac\" data-element_type=\"section\" data-e-type=\"section\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;}\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-wide\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-61c4ee0\" data-id=\"61c4ee0\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-5395861 elementor-widget__width-auto elementor-widget elementor-widget-heading\" data-id=\"5395861\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h2 class=\"elementor-heading-title elementor-size-default\">Consulenza<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-d0d246c elementor-widget elementor-widget-text-editor\" data-id=\"d0d246c\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p>La gestione della vita quotidiana \u00e8 spesso caratterizzata da grandi sfide per le persone con EB e per i loro familiari. Poich\u00e9 l\u2019EB \u00e8 molto rara, anche l\u2019esperienza nell\u2019affrontare la malattia \u00e8 molto limitata. A questo proposito DEBRA Svizzera offre, mediante la consulenza EB mobile, un sostegno sostanziale alle persone colpite e alle persone loro vicine.<\/p>\n<p>La consulenza EB mobile si concentra sugli aspetti non medici della gestione della EB. Le questioni riguardanti la vita quotidiana o l\u2019ingresso in una nuova fase della vita (p.\u00a0es. la scolarizzazione) pongono le famiglie con persone affette da EB di fronte a problemi molto speciali. Con la nostra consulenza, vogliamo rendere possibile una visione completa che non conosca tab\u00f9.<\/p>\n<p>La coordinatrice della consulenza EB mobile pu\u00f2 essere raggiunta via e-mail all\u2019indirizzo <a href=\"mailto:beratung@schmetterlingskinder.ch\">beratung@schmetterlingskinder.ch<\/a><\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-bf16477 elementor-widget elementor-widget-spacer\" data-id=\"bf16477\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"spacer.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<div class=\"elementor-spacer\">\n\t\t\t<div class=\"elementor-spacer-inner\"><\/div>\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section data-particle_enable=\"false\" data-particle-mobile-disabled=\"false\" class=\"elementor-section elementor-top-section elementor-element elementor-element-6b0e506 elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"6b0e506\" data-element_type=\"section\" data-e-type=\"section\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;}\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-wide\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-13e4c2b\" data-id=\"13e4c2b\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-ad060e6 animated-fast elementor-invisible elementor-widget elementor-widget-image\" data-id=\"ad060e6\" data-element_type=\"widget\" data-e-type=\"widget\" data-settings=\"{&quot;_animation&quot;:&quot;fadeIn&quot;}\" data-widget_type=\"image.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<img fetchpriority=\"high\" decoding=\"async\" width=\"1536\" height=\"480\" src=\"https:\/\/www.schmetterlingskinder.ch\/wp-content\/uploads\/2020\/01\/baer2-1536x480.jpg\" class=\"attachment-1536x1536 size-1536x1536 wp-image-1514\" alt=\"\" srcset=\"https:\/\/www.schmetterlingskinder.ch\/wp-content\/uploads\/2020\/01\/baer2-1536x480.jpg 1536w, https:\/\/www.schmetterlingskinder.ch\/wp-content\/uploads\/2020\/01\/baer2-300x94.jpg 300w, https:\/\/www.schmetterlingskinder.ch\/wp-content\/uploads\/2020\/01\/baer2-1024x320.jpg 1024w, https:\/\/www.schmetterlingskinder.ch\/wp-content\/uploads\/2020\/01\/baer2-768x240.jpg 768w, https:\/\/www.schmetterlingskinder.ch\/wp-content\/uploads\/2020\/01\/baer2-2048x640.jpg 2048w\" sizes=\"(max-width: 1536px) 100vw, 1536px\" \/>\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-797e360 elementor-widget elementor-widget-spacer\" data-id=\"797e360\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"spacer.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<div class=\"elementor-spacer\">\n\t\t\t<div class=\"elementor-spacer-inner\"><\/div>\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-4b4cd84 elementor-widget__width-auto elementor-widget elementor-widget-heading\" data-id=\"4b4cd84\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h2 class=\"elementor-heading-title elementor-size-default\">Sostegno<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-f2cdff8 elementor-widget elementor-widget-text-editor\" data-id=\"f2cdff8\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p>Vivere con l\u2019EB \u00e8 spesso una grande sfida per le persone colpite e le loro famiglie. Se poi si aggiungono anche preoccupazioni finanziarie, la situazione pu\u00f2 diventare rapidamente un pesante onere.<\/p>\n<p>Con il <strong>fondo \u00abSostegno per le persone colpite\u00bb<\/strong>, DEBRA Svizzera consente alle persone affette da EB, nei limiti del possibile, di soddisfare bisogni specifici, come l\u2019acquisto di ausili, o il conseguimento di altri traguardi significativi che aumentano la qualit\u00e0 della vita o facilitano la vita quotidiana con l\u2019EB. Il fondo offre assistenza laddove nessun altro fornitore di prestazioni (come AI o casse malati) si fa carico dei costi.<\/p>\n<p>Il fondo \u00e8 finanziato da donazioni in denaro. Possono presentare domanda tutti i membri interessati di DEBRA Svizzera.<\/p>\n<p>Ulteriori informazioni sono disponibili nell\u2019<a href=\"https:\/\/www.schmetterlingskinder.ch\/wp-login.php\">Area membri<\/a>.<\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-a16fda3 elementor-widget elementor-widget-spacer\" data-id=\"a16fda3\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"spacer.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<div class=\"elementor-spacer\">\n\t\t\t<div class=\"elementor-spacer-inner\"><\/div>\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section data-particle_enable=\"false\" data-particle-mobile-disabled=\"false\" class=\"elementor-section elementor-top-section elementor-element elementor-element-89c8c40 elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"89c8c40\" data-element_type=\"section\" data-e-type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-20c362a\" data-id=\"20c362a\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-eb53eb0 elementor-widget elementor-widget-spacer\" data-id=\"eb53eb0\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"spacer.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<div class=\"elementor-spacer\">\n\t\t\t<div class=\"elementor-spacer-inner\"><\/div>\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-b262bff elementor-position-inline-end elementor-widget__width-auto elementor-view-default elementor-mobile-position-block-start elementor-widget elementor-widget-icon-box\" data-id=\"b262bff\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"icon-box.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<div class=\"elementor-icon-box-wrapper\">\n\n\t\t\t\t\t\t<div class=\"elementor-icon-box-icon\">\n\t\t\t\t<span  class=\"elementor-icon\">\n\t\t\t\t<svg xmlns=\"http:\/\/www.w3.org\/2000\/svg\" xmlns:xlink=\"http:\/\/www.w3.org\/1999\/xlink\" width=\"100%\" height=\"100%\" viewBox=\"0 0 931 825\" xml:space=\"preserve\" style=\"fill-rule:evenodd;clip-rule:evenodd;stroke-miterlimit:1.41421;\">    <g transform=\"matrix(1,0,0,1,-1467.37,-217.81)\">        <g transform=\"matrix(4.16667,0,0,4.16667,0,0)\">            <path d=\"M475.766,97.455C472.576,70.665 452.045,51.071 429.893,53.702C407.759,56.327 392.395,80.187 395.579,106.988C396.499,114.72 398.895,121.82 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d=\"M566.518,153.851C555.42,143.52 534.006,137.942 510.641,139.288C510.197,139.296 504.074,139.428 495.223,141.185C483.939,143.334 473.66,147.056 465.514,151.952C446.211,163.025 427.06,181.507 427.06,201.556C427.06,205.966 427.988,210.454 430.042,214.956C436.872,229.894 449.297,237.649 449.822,237.97C467.977,251.035 489.059,252.781 497.688,241.856C500.082,238.826 501.23,235.145 501.23,231.119C501.23,223.522 496.924,214.749 489.389,206.748C496.496,207.731 503.75,208.405 511.379,207.938C546.957,205.735 574.613,188.979 574.328,169.788C574.242,164.033 571.539,158.521 566.518,153.851ZM476.814,221.456C476.775,224.079 475.963,226.14 474.398,227.587C469.271,232.333 457.434,228.962 448.557,220.22C442.705,214.45 439.127,207.35 439.213,201.7C439.254,199.076 440.064,197.016 441.623,195.567C446.748,190.818 458.582,194.202 467.463,202.954C473.25,208.645 476.814,215.635 476.814,221.255L476.814,221.456ZM533.373,170.394C533.373,180.691 515.994,190.445 495.295,191.73C480.744,192.619 467.553,189.32 460.867,183.128C458.248,180.698 456.895,178.028 456.853,175.193C456.701,164.845 474.139,155.018 494.938,153.736C509.484,152.838 522.672,156.131 529.357,162.329C531.98,164.755 533.33,167.426 533.373,170.26L533.373,170.394Z\" style=\"fill:#da2128;fill-rule:nonzero;\"><\/path>        <\/g>        <g transform=\"matrix(4.16667,0,0,4.16667,0,0)\">            <path d=\"M566.518,153.851C555.42,143.52 534.006,137.942 510.641,139.288C510.197,139.296 504.074,139.428 495.223,141.185C483.939,143.334 473.66,147.056 465.514,151.952C446.211,163.025 427.06,181.507 427.06,201.556C427.06,205.966 427.988,210.454 430.042,214.956C436.872,229.894 449.297,237.649 449.822,237.97C467.977,251.035 489.059,252.781 497.688,241.856C500.082,238.826 501.23,235.145 501.23,231.119C501.23,223.522 496.924,214.749 489.389,206.748C496.496,207.731 503.75,208.405 511.379,207.938C546.957,205.735 574.613,188.979 574.328,169.788C574.242,164.033 571.539,158.521 566.518,153.851ZM476.814,221.456C476.775,224.079 475.963,226.14 474.398,227.587C469.271,232.333 457.434,228.962 448.557,220.22C442.705,214.45 439.127,207.35 439.213,201.7C439.254,199.076 440.064,197.016 441.623,195.567C446.748,190.818 458.582,194.202 467.463,202.954C473.25,208.645 476.814,215.635 476.814,221.255L476.814,221.456ZM533.373,170.394C533.373,180.691 515.994,190.445 495.295,191.73C480.744,192.619 467.553,189.32 460.867,183.128C458.248,180.698 456.895,178.028 456.853,175.193C456.701,164.845 474.139,155.018 494.938,153.736C509.484,152.838 522.672,156.131 529.357,162.329C531.98,164.755 533.33,167.426 533.373,170.26L533.373,170.394Z\" style=\"fill:none;stroke-width:1.38px;stroke:#da2128;\"><\/path>        <\/g>    <\/g><\/svg>\t\t\t\t<\/span>\n\t\t\t<\/div>\n\t\t\t\n\t\t\t\t\t\t<div class=\"elementor-icon-box-content\">\n\n\t\t\t\t\t\t\t\t\t<h1 class=\"elementor-icon-box-title\">\n\t\t\t\t\t\t<span  >\n\t\t\t\t\t\t\tOfferte formative ed eventi\t\t\t\t\t\t<\/span>\n\t\t\t\t\t<\/h1>\n\t\t\t\t\n\t\t\t\t\n\t\t\t<\/div>\n\t\t\t\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-07135ab elementor-widget elementor-widget-spacer\" data-id=\"07135ab\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"spacer.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<div class=\"elementor-spacer\">\n\t\t\t<div class=\"elementor-spacer-inner\"><\/div>\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section data-particle_enable=\"false\" data-particle-mobile-disabled=\"false\" class=\"elementor-section elementor-top-section elementor-element elementor-element-13c89d8 elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"13c89d8\" data-element_type=\"section\" data-e-type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-57a3bd6\" data-id=\"57a3bd6\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<section data-particle_enable=\"false\" data-particle-mobile-disabled=\"false\" class=\"elementor-section elementor-inner-section elementor-element elementor-element-08b8c69 animated-fast elementor-section-boxed elementor-section-height-default elementor-section-height-default elementor-invisible\" data-id=\"08b8c69\" data-element_type=\"section\" data-e-type=\"section\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;,&quot;animation&quot;:&quot;fadeInUp&quot;}\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-wide\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-50 elementor-inner-column elementor-element elementor-element-1b47ce8\" data-id=\"1b47ce8\" data-element_type=\"column\" data-e-type=\"column\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;}\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-bf870e9 elementor-widget elementor-widget-spacer\" data-id=\"bf870e9\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"spacer.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<div class=\"elementor-spacer\">\n\t\t\t<div class=\"elementor-spacer-inner\"><\/div>\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t<div class=\"elementor-column elementor-col-50 elementor-inner-column elementor-element elementor-element-5c4b1c2\" data-id=\"5c4b1c2\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-8863939 deco elementor-widget__width-auto elementor-widget elementor-widget-heading\" data-id=\"8863939\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h2 class=\"elementor-heading-title elementor-size-default\">Giornata di formazione<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-ea5b7fc elementor-widget elementor-widget-text-editor\" data-id=\"ea5b7fc\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p>La <strong>Giornata di formazione<\/strong> di DEBRA Svizzera si svolge da molti anni a marzo, al termine dell\u2019Assemblea generale. Le persone affette da EB, i loro familiari, il personale di cura e altri specialisti, cos\u00ec come i membri di solidariet\u00e0 affrontano nel corso di un\u2019intera giornata vari argomenti relativi alla EB.<\/p><p>Le relatrici e i relatori svizzeri ed europei riferiscono sulle novit\u00e0 provenienti dalla ricerca e dalla clinica, su trucchi e consigli per la vita quotidiana e su altri aspetti della vita con l\u2019EB.<\/p><p>Sotto questo punto di vista assumono un\u2019importanza particolare anche gli scambi di opinioni tra persone colpite, familiari e specialisti, che avvengono sotto la guida di un moderatore. La presenza delle aziende del gruppo di sponsor consente di gettare uno sguardo approfondito sui nuovi prodotti e ausili.<\/p><p><a href=\"https:\/\/www.schmetterlingskinder.ch\/wp-content\/uploads\/2020\/06\/20200617_DEBRA_Einladung_WBTag20_fr-2.pdf\" target=\"_blank\" rel=\"noopener\">Invito 2020 (FR)<\/a><\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section data-particle_enable=\"false\" data-particle-mobile-disabled=\"false\" class=\"elementor-section elementor-inner-section elementor-element elementor-element-7cf1636 animated-fast elementor-reverse-mobile elementor-section-boxed elementor-section-height-default elementor-section-height-default elementor-invisible\" data-id=\"7cf1636\" data-element_type=\"section\" data-e-type=\"section\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;,&quot;animation&quot;:&quot;fadeInUp&quot;}\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-wide\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-50 elementor-inner-column elementor-element elementor-element-e219246\" data-id=\"e219246\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-5313c27 deco elementor-widget__width-auto elementor-widget elementor-widget-heading\" data-id=\"5313c27\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h2 class=\"elementor-heading-title elementor-size-default\">Incontro dei bambini farfalla<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-43121a6 elementor-widget elementor-widget-text-editor\" data-id=\"43121a6\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p>Il cosiddetto incontro dei bambini farfalla si tiene a settembre. Per ospitare l\u2019incontro scegliamo ogni anno una localit\u00e0 che faccia da giusta cornice al tema della giornata. Ad esempio, i \u00abbambini farfalla\u00bb e i loro familiari si sono gi\u00e0 incontrati in un centro ippico, in alcuni zoo, nel museo svizzero dei trasporti e addirittura sul Gornergrat.<\/p><p>Questa giornata intende anche trasmettere informazioni e conoscenze. L\u2019attenzione \u00e8 tuttavia rivolta all\u2019evento sociale, allo scambio e, ultimo ma non meno importante, al semplice divertimento e alle esperienze vissute in comune. Luogo e programma sono pensati in modo tale che tutti possano davvero partecipare.<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t<div class=\"elementor-column elementor-col-50 elementor-inner-column elementor-element elementor-element-78a634a\" data-id=\"78a634a\" data-element_type=\"column\" data-e-type=\"column\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;}\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-a80f980 elementor-widget elementor-widget-spacer\" data-id=\"a80f980\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"spacer.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<div class=\"elementor-spacer\">\n\t\t\t<div class=\"elementor-spacer-inner\"><\/div>\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section data-particle_enable=\"false\" data-particle-mobile-disabled=\"false\" class=\"elementor-section elementor-inner-section elementor-element elementor-element-8248e89 animated-fast elementor-section-boxed elementor-section-height-default elementor-section-height-default elementor-invisible\" data-id=\"8248e89\" data-element_type=\"section\" data-e-type=\"section\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;,&quot;animation&quot;:&quot;fadeInUp&quot;}\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-wide\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-50 elementor-inner-column elementor-element elementor-element-0a759e8\" data-id=\"0a759e8\" data-element_type=\"column\" data-e-type=\"column\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;}\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-ec81374 elementor-widget elementor-widget-spacer\" data-id=\"ec81374\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"spacer.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<div class=\"elementor-spacer\">\n\t\t\t<div class=\"elementor-spacer-inner\"><\/div>\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t<div class=\"elementor-column elementor-col-50 elementor-inner-column elementor-element elementor-element-dc23398\" data-id=\"dc23398\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-339e174 deco elementor-widget__width-auto elementor-widget elementor-widget-heading\" data-id=\"339e174\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h2 class=\"elementor-heading-title elementor-size-default\">Attivit\u00e0 di informazione<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-de9b566 elementor-widget elementor-widget-text-editor\" data-id=\"de9b566\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p>L\u2019epidermolisi bollosa (in sigla EB) \u00e8 una malattia sistemica rara e molto complessa. La gestione della vita quotidiana \u00e8 estremamente impegnativa e le esigenze mutano durante l\u2019intero arco di vita. A causa della rarit\u00e0 della malattia, l\u2019opinione pubblica dispone di conoscenze relativamente scarse sull\u2019EB. Attraverso il nostro lavoro, vogliamo diffondere e rendere di dominio pubblico maggiori informazioni sulla malattia, sulle sue manifestazioni e sul trattamento delle persone colpite.<\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<div class=\"elementor-element elementor-element-88c3610 elementor-widget elementor-widget-spacer\" data-id=\"88c3610\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"spacer.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<div class=\"elementor-spacer\">\n\t\t\t<div class=\"elementor-spacer-inner\"><\/div>\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<\/div>\n\t\t","protected":false},"excerpt":{"rendered":"<p>Cos\u2019\u00e8 l\u2019EB? L&#8217;epidermolisi bollosa (EB) \u00e8 una malattia della pelle congenita, grave e attualmente incurabile. Quelli colpiti sono chiamati colloquialmente&#8221;bambini farfalla&#8221; perch\u00e9 la pelle \u00e8 simbolicamente vulnerabile come le ali di una farfalla. Come organizzazione di pazienti, Debra svizzera sostiene le famiglie e la rete di pazienti colpiti nella gestione dei problemi e delle preoccupazioni [&hellip;]<\/p>\n","protected":false},"author":1,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_acf_changed":false,"footnotes":""},"class_list":["post-1703","page","type-page","status-publish","hentry"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.7 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Offerte di DEBRA - DEBRA Schweiz<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.schmetterlingskinder.ch\/it\/offerte-di-debra\/\" \/>\n<meta property=\"og:locale\" content=\"it_IT\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Offerte di DEBRA - DEBRA Schweiz\" \/>\n<meta property=\"og:description\" content=\"Cos\u2019\u00e8 l\u2019EB? L&#8217;epidermolisi bollosa (EB) \u00e8 una malattia della pelle congenita, grave e attualmente incurabile. Quelli colpiti sono chiamati colloquialmente&#8221;bambini farfalla&#8221; perch\u00e9 la pelle \u00e8 simbolicamente vulnerabile come le ali di una farfalla. 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